About

I’m a 38-year-old mother of 4, who was recently diagnosed with Huntington’s Disease, a fatal neurodegenerative disease that causes dementia, personality changes, uncontrolled movement, and extreme loss of coordination.

I’m writing this blog for my children to discover sometime in the future. I’m hoping that it will be some proof to hang on to that I love them and cherish them and care about them, even if their more recent experiences of me are very different.

I am grateful for the loving support of my husband, Patrick, who encouraged me to start writing this blog.

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